Tuesday, August 20, 2013

Boycotting Drs

It seems that every time we take Miss L to the dr, there is something wrong. She had her “healthy” 18 month check today (wahoo, 18 months already?!). For the most part she is a healthy, happy, crazy, little diva who loves to play in the dirt, put on my makeup, and see just what and how high she can climb.
On the inside it’s a little different though. We have to watch her when she plays. If she is playing hard, or running, we have to watch to see if she stops at all to squat and catch her breath or rest for a min. Why? Because she has holes in her heart. And if she starts this kind of behavior, something isn’t going right and we get to take a trip to her heart dr sooner than we thought we needed.
Another odd thing Dr S heard today is a “murmur” in the vein in her neck. He typically hears them when they have heart murmur type A, but she has heart murmur type B (not technical terms, but the easiest way I can think to tell the difference between different heart murmurs!). He said he isn’t concerned about it, and it’s not even classified as an abnormality, but he will take note of it and make sure the her heart dr knows. Great. Something else “we don’t need to worry about” but still do.
And to top it off today, her iron level came back so low that Dr S is hoping it was a mistake on their machine. He ordered her a CBC though that I have to go get drawn tomorrow to check it again and all other blood components to make sure nothing is going on. We were hoping to get her adenoids and tonsils out soon though (have an appt with the ear, nose, throat ppl on Monday to discuss it). Dr S told me that if it is really that low, she will not be able to have any type of surgery anytime soon. She has really bad sleep apnea though and needs them taken out to see if it helps her.
I am just so tired of the constant worry with this little girl! I worry enough everyday watching her try to keep up with her brother, climbing up the ladder on the play set, going head first down her little slide, being an active kid with scraped knees and splinters in her hand, that I don’t want to have to add the worry that things aren’t going the way they should be on the inside.

2 comments:

  1. Stay positive friend! I know it's so hard not to worry about our LO's, and I'm sorry you're going through this. I'll be keeping you guys in my prayers!!!

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